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Thomas Davis's avatar

Thanks so much, Pam. I'm sharing this post with a wide group of friends in Delaware.

Searching for the Words's avatar

Thank you, Pam. I’ve read several of these - but you’ve given me a few titles for my wish list. “What If It's Not Alzheimer’s?” by Radin and Radin (eds) is an excellent resource - particularly to FTD. Much like you describe “The 36-Hour Day.” I also loved Boss’s book and Heming Willis's. Just finishing a recommendation from Heming Willis by Teepa Snow, “Understanding the Changing Brain.” It’s been easy and excellent. Finally, I’m a person of Christian faith, as is Marilyn McEntyre, but her book “Word By Word: a daily spiritual practice” while not specifically Christian has been a lifeline for me. In short daily excerpts she unpacks words like “Listen”, “Let go”, “Dare” and “Accept” in ways I found deeply helpful. ❤️

Pam Johnston's avatar

Teepa Snow has also been recommended by my therapist, though I haven't looked at any of her books yet. It's good to know that you found her work helpful.

Jonathan Parham's avatar

Wow. Helpful as always. My older brother was diagnosed with Alzheimers this year and I feel like I have to catch up

Tharp's avatar

May I also recommend “Learning to Speak Alzheimer’s” by Robert N. Butler, M.D.

Rosemary Van Gelderen's avatar

I cared for both of my parents through dementia. My dad passed away a year after he began to act irrationally. My mom lived another 8 years and I spent most of those juggling looking after her, her property and my youngest 5 teenagers still at home. It was a rough learning curve. I have a few posts about dementia but realize I should write more about the aspects of the disease. It wasa steep learning curve for me.

After reading this list, I went to Amazong amd started reading The Year of Magical Thinking. I have never read anything of Didion's. She's quite good. My husband was diagnosed with stage 4 cancer two years ago, so this may be my future. Thanks for sharing.

Karen Uehling's avatar

I recommend SOME BRIGHT NOWHERE, a recent novel by Ann Packer

https://www.goodreads.com/book/show/231388884

Sarah Bain's avatar

Thank you for this. Some good new ones for me. I’ve been wanting to read Amy Bloom’s memoir and hadn’t so this is a good reminder.

Pam Johnston's avatar

It's very good. Completely heartbreaking.

Victoria's avatar

Thanks, Pam. I'm always on the lookout for recommendations. I'm adding these to my To Read list. I highly recommend Megan Devine's work and Lucy Hone.

This is my 2024 Reads that I'll be updating: https://www.carermentor.com/p/a-caregivers-top-ten-annual-re-reads

Pam Johnston's avatar

Thanks for sharing your list (and adding my recommendations)!